While I'm sad that you actually have CFS, I'm secretly kind of happy to know someone who gets what I've been going through for the last few years. I know CFS =/= narcolepsy, but the whole just... you can't do what you need to because some part of your brain/body wants you to sleep. The sheer amount of your life that is taken away from you.
I get a lot of the a), "wow, I wish I could get to sleep like that" or "I wish I could nap like you". No, you don't! I um, technically, need to go see the driving people and have my license edited so I can't drive if I haven't had my meds. And while I'm verging on a rant, there's two things that piss me off when people find out- i) They think they know what it's like because they've pulled allnighters. ii) "Just snap out of it, you're just being lazy"
Okay, the rant sort of dwindled by dot pointing it. Point (i) kind of turns into (ii). People kind of understand what CFS is but too often mistake it for CBF, but narcolepsy, what is that? These kind of disorders are like mental disorders, the general public doesn't quite get them, and they're not real, just get over it. As Megz said, she'd like an excuse to sit around without judgment. But it's not without judgment.
Standing at the register the other day, I'd forgotten my pill and I felt like I was going to collapse. It starts with tunnel vision, then lack of coordination, weak pulse, and then feeling like you haven't slept in a week. Parts of your brain are actually asleep. Sitting down, you'll fall asleep. Standing, well, it's fucking scary, tbqh. Asking to be excused is embarrassing, and the answer is likely to be "what, because you're tired?"
Oh and the good ol', "You're just a fat, lazy sod who's using this as an excuse." Most frequently heard from my mother :P
I do hear a lot of the "I'd die" one, with reference to MSG, but not nearly as much as you hear. I can't eat a lot of fats either, so most fast food is yucky. I kind of get your eating problems, but without having to stay away from chocolate. (At least you still get a bit of dark chocolate, which is infinitely better anyway ;) )
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The sheer amount of your life that is taken away from you.
I get a lot of the a), "wow, I wish I could get to sleep like that" or "I wish I could nap like you". No, you don't! I um, technically, need to go see the driving people and have my license edited so I can't drive if I haven't had my meds.
And while I'm verging on a rant, there's two things that piss me off when people find out-
i) They think they know what it's like because they've pulled allnighters.
ii) "Just snap out of it, you're just being lazy"
Okay, the rant sort of dwindled by dot pointing it. Point (i) kind of turns into (ii). People kind of understand what CFS is but too often mistake it for CBF, but narcolepsy, what is that?
These kind of disorders are like mental disorders, the general public doesn't quite get them, and they're not real, just get over it. As Megz said, she'd like an excuse to sit around without judgment. But it's not without judgment.
Standing at the register the other day, I'd forgotten my pill and I felt like I was going to collapse. It starts with tunnel vision, then lack of coordination, weak pulse, and then feeling like you haven't slept in a week. Parts of your brain are actually asleep. Sitting down, you'll fall asleep. Standing, well, it's fucking scary, tbqh. Asking to be excused is embarrassing, and the answer is likely to be "what, because you're tired?"
Oh and the good ol', "You're just a fat, lazy sod who's using this as an excuse." Most frequently heard from my mother :P
I do hear a lot of the "I'd die" one, with reference to MSG, but not nearly as much as you hear. I can't eat a lot of fats either, so most fast food is yucky. I kind of get your eating problems, but without having to stay away from chocolate. (At least you still get a bit of dark chocolate, which is infinitely better anyway ;) )