I've started wearing slightly uncomfortable shows, that way my feet start hurting if I walk/stand too much :)
Oh that is hysterical and a brilliant idea!
Ultimately I have found that the only way to cope is routine. I have a routine and when I stick to it I stay reasonably well and can cope with the life I have. I still have to deal with my frustration about the stuff I can't do of course, but that too gets easier with practice.
I guess that is what I most wish someone had told me when I first got ill - so I'll tell you in the hope it gives you some benefit :) It does get easier. Even if you don't get better in noticeable increments (I am lucky, I have improved, but the timescale is years not months or weeks) simply learning how to cope becomes easier and that makes life as a whole easier.
not only too sick to work but too sick to leave work, so I'd have to have a nap to get up the energy to go home.
Oh yes. And the persistent problem of when one is feeling absolutely vile and can barely think, let alone move, and people will keep coming up and asking if they can help. Grrr. I have to train everyone that if they see me going off by myself to sit down with my eyes shut then I don't need help, I need to be left alone to get the rest my body is crying out for. The crying being quite literal on occasions because I can get very weepy when I am badly crashing.
Also it's funny the random things you can have in common with people, isn't it? Yeh, it's weird. I must say I was blinking with surprise when I read your post. Although sadly this thing is reasonably common - whenever I tell someone I've got it I am never the only person they know. And of course there is a higher percentage of disabled/chronically ill folk on LJ because we have more time to waste spend online than healthy peeps :)
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Oh that is hysterical and a brilliant idea!
Ultimately I have found that the only way to cope is routine. I have a routine and when I stick to it I stay reasonably well and can cope with the life I have. I still have to deal with my frustration about the stuff I can't do of course, but that too gets easier with practice.
I guess that is what I most wish someone had told me when I first got ill - so I'll tell you in the hope it gives you some benefit :) It does get easier. Even if you don't get better in noticeable increments (I am lucky, I have improved, but the timescale is years not months or weeks) simply learning how to cope becomes easier and that makes life as a whole easier.
Oh yes. And the persistent problem of when one is feeling absolutely vile and can barely think, let alone move, and people will keep coming up and asking if they can help. Grrr. I have to train everyone that if they see me going off by myself to sit down with my eyes shut then I don't need help, I need to be left alone to get the rest my body is crying out for. The crying being quite literal on occasions because I can get very weepy when I am badly crashing.
Yeh, it's weird. I must say I was blinking with surprise when I read your post. Although sadly this thing is reasonably common - whenever I tell someone I've got it I am never the only person they know. And of course there is a higher percentage of disabled/chronically ill folk on LJ because we have more time to
wastespend online than healthy peeps :)