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Getting the bad news
So I FINALLY got to a recommended chronic fatigue specialising GP today. He started by asking what the "Dr" was for, and then when I said maths his whole face lit up and he started fanboying maths (apparently he seriously considered majoring) which was a nice start. He took my history and unlike all the vague handwaving I've gotten from other doctors was all "Ah, I know what's wrong with and how we can fix it" which was both encouraging and discouraging (I'm not sure anyone can be that sure with chronic fatigue)
Anyway, he gave me some vitamins and stuff to take, and suggested a gently increasing course of walking, and then said "Hmm. You say you're intolerant of dairy. Well, you should cut that out completely and also cut out gluten"
"Really? Are you sure? Because it never seems to affect me"
"Trust me"
"And..you mean cut them out completely? Not even skim milk?"
"Yes, sorry, even a little bit can set it all off again"
"But! But!! ...man, this is going to suck, I'm hard enough to feed as it is"
And I went to the supermarket, and it does suck. There do not appear to be any cake or bread mixes (or actual cakes or breads) which don't replace wheat with soy and or milk powder. All I could find was plain flour and rice cakes :/ Are there any high fibre gluten-free grains apart from brown rice and amaranth? I eat a lot of whole grains. Any other gluten-free-living advice would be nice, I may have specific questions after I have a chance to rest and think about it more (shopping was TIRING)
He was fairly understanding, since he has trouble finding gluten free stuff himself. I'd fight it more but afaict it's pretty much the first thing everyone suggests for chronic fatigue :/
Also he said I should try to make sure my meat is organic
Me: "Does kangaroo count?"
Dr (with pained expression) Kangaroo?
Me: Why, is that bad?
Dr: How can eat something that can give you a hug?
Heh. That is SO not my first consideration with food right now :) (And yes, it turns out he's vegan, though he made no attempt to get me off meat or eggs and pretty much implied I should keep eating lots)
Oh, and if you want the doctors details it's Dr. Alastair Nuttall, 6 Burgess Street Midland, 9250 6977.
Anyway, he gave me some vitamins and stuff to take, and suggested a gently increasing course of walking, and then said "Hmm. You say you're intolerant of dairy. Well, you should cut that out completely and also cut out gluten"
"Really? Are you sure? Because it never seems to affect me"
"Trust me"
"And..you mean cut them out completely? Not even skim milk?"
"Yes, sorry, even a little bit can set it all off again"
"But! But!! ...man, this is going to suck, I'm hard enough to feed as it is"
And I went to the supermarket, and it does suck. There do not appear to be any cake or bread mixes (or actual cakes or breads) which don't replace wheat with soy and or milk powder. All I could find was plain flour and rice cakes :/ Are there any high fibre gluten-free grains apart from brown rice and amaranth? I eat a lot of whole grains. Any other gluten-free-living advice would be nice, I may have specific questions after I have a chance to rest and think about it more (shopping was TIRING)
He was fairly understanding, since he has trouble finding gluten free stuff himself. I'd fight it more but afaict it's pretty much the first thing everyone suggests for chronic fatigue :/
Also he said I should try to make sure my meat is organic
Me: "Does kangaroo count?"
Dr (with pained expression) Kangaroo?
Me: Why, is that bad?
Dr: How can eat something that can give you a hug?
Heh. That is SO not my first consideration with food right now :) (And yes, it turns out he's vegan, though he made no attempt to get me off meat or eggs and pretty much implied I should keep eating lots)
Oh, and if you want the doctors details it's Dr. Alastair Nuttall, 6 Burgess Street Midland, 9250 6977.
no subject
Farinata and socca - chickpea flour fried breads from Southern Europe. Super yummy with onions and herbs baked in. Try it, it's easy - especially good when you're at the end of your tether and need something quick and easy - and it stores well in the fridge too. http://www.chow.com/recipes/11011
Tapioca flour with buckwheat (not actually wheat!) works pretty well with baking powder.
And like one of the other posters said, your local healthfood shop should be able to help out.
And perhaps you've already heard about the "spoons theory"? A couple of links about it follow, one of which was written by a friend of mine:
http://viv.id.au/blog/?p=517
http://stanford.wellsphere.com/lyme-disease-article/energy-and-spoons/333850
Good luck - do remember to ask people for support if you need it!
no subject
Oh yes, I know all about spoons. I am currently answering email to build up the physical spoons for lunch :)
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