Thorns

Against Access

2023-11-13T03:44:12Z

Against Access by John Lee Clark

As I said on tumblr:
This is really interesting to me, in part because of the extent to which it does not match my experience as a disabled person. Which is fine, because he doesn't claim to speak for all disabled people, just for people like himself. And I am a very different kind of disabled.
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Links Post May 2019

2019-05-04T10:40:00Z

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Links: Disability, Chronic Illness, and Abuse

2019-03-04T06:29:38Z

The Disabled Gaming Resource

Do Some Trauma Survivors Cope by Overworking?

The Consequences of Untreated Pain

Treatment Overview from the American Myalgic Encephalomyelitis and
Chronic Fatigue Syndrome Society

The world of estranged parents' forums: The Missing Missing Reason Understanding the behaviour of toxic/abusive people

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Bad science misled millions with chronic fatigue syndrome. Here’s how we fought back

2016-09-22T03:24:13Z

Bad science misled millions with chronic fatigue syndrome. Here’s how we fought back

From all accounts the effects of the PACE trial were most horrific in the UK, but the idea that my fatigue is all in my head and is best treated with exercise has come up repeatedly for me, too. Ironically it's actually made me exercise less: I'm not willing to try exercising without the help of a medical professional I trust to say if I'm pushing too hard, and I've yet to meet any. They all set the baseline for "mild exercise" at a level I know would make me sicker, and have seen other people with cfs harmed by listening to this kind of advice.

I'm also really glad none of the psychologists or psychiatrists I've seen subscribed to the "tell patient to ignore their understanding of their own health" approach to CBT. Blech.

The "you don't have exercise intolerance you're just neurotic about exercise and need to believe in yourself" attitude is so appealing to able bodied people, and can seduce people wth cfs, too. For a while. Back when cfids_me was more active we'd always have people touting the Lightning Process.

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Liiiiiiiiinks

2014-07-13T15:03:11Z

Let's see if I can remember what I wanted to say for any of them...

Jennifer Lawrence And The History Of Cool Girls. I had some further thoughts on tumblr (which I'd been pondering turning into a post here but tumblr got to me first) This ffa discussion of what people consider a feminist character touches on related points.

I've been thinking a lot about the moral obligations of adults towards the teenagers we encounter online, especially now I'm on tumblr which is FULL of teenagers. I deliberately seek out friends around my age and still have heaps of teen followers, some of them mutual because we genuinely have stuff in common.
How we were fooled into thinking sexual predators lurk everywhere argues that we need to look out and care for vulnerable teens more than worry about malicious adults (though that's important too) Here's a discussion on ffa of the issues around teens and adults and porn, something I don't have to worry about as much personally since everything I create tends to be at most PG rated anyway but still find disquieting, mostly when I encounter the porn my teen friends are into (I don't object to them being into it I JUST DON'T WANT TO KNOW). But that particular aspect aside I feel like...I have a responsibility to be a NON creepy adult rather than just avoiding younger people, or the only adults teenagers will meet are the creepy ones (and not just sexually creepy, they can take advantage emotionally or monetarily too)

Meditation Nation On the intense emotional upheaval meditiation can cause, and the difference between doing it for personal gain and religious insight.

Curbing Online Abuse Isn’t Impossible. Here’s Where We Start About constructing social networks that encourage good social norms.

The difference between cultural appropriation and cultural exchange

Inspiration Disinformation on the artists vs haters dichotomy.

Why Are Doctors Skeptical & Unhelpful about Chronic Fatigue Syndrome?

Why I no longer engage the “Are aces queer?” question The important thing is respect and inclusion in general, eg if people who didn't see aces as queer didn't THEN divide the world into "straight vs queer" instead of "straight, queer, or asexual" there'd be much less of a problem.

The People vs the Political Class The gap between politics and what the people (of Australia, and in general) actually want.

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A Case of Chronic Denial

2009-10-24T01:59:49Z

I've seen like a bazillion links to the recent discovery that CFS/ME may be linked to a retrovirus called XMRV. But livewareissue linked me a particularly good one: A Case of Chronic Denial

If nothing else it highlights the terrible way CFS/ME has been ignored/belittled by the medical establishment.

I'm really not sure how I feel about this discovery. I mean for a start it's early days and correlation is not causation etc (especially since cfs tends to be correlated with all sorts of virii) But if it is true that CFS is to XMRV as AIDS is to HIV well..on the one hand, possible avenue for cure/treatment, yay. On the other hand..being contagious and having a virus mostly known for causing cancer, less yay.

Overall my reaction is as to most suggestions/revelations about CFS, eg putting it aside to think about it for a while and not get too excited. Because I just don't have the energy.

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Various links and stuff

2009-10-08T00:03:28Z

People have gotten sick of the feminist site Feministing's ableism, from never talking about disability to letting anyone who calls out ableist comments/posts be dogpiled rather than supported. Here's a Feministing and Disability linkspam, with an open letter to sign as well as a selection of the responses to this at Feministing.

Personally I decided I didn't like Feministing because of their racism back before I got disabled and started noticing ableism more, but they're pretty popular and influential, I hope some good comes of all this.

And now some miscellaneous links.

Another post by trouble, (WARNING) Take Back The Night has some truly disturbing stats about abuse of PWD. Jesus.
The Open Letter To Those Without CFS/Fibro
Students remember inaccurate history films seen in class as fact
Visibility Matters: The Woman Who Cried "Bisexual" There's a lot of creepy sexuality policing where bisexuals are told they're just straight people trying to sound cool or whatever. So I found it instructive to read about how it looks when someone really is pretending.
Recent Migrants and Inclusion in the Australian Arts Scene: Part 1 - Education

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A PSA for FOC and GLBT BFFs

2009-05-18T00:14:26Z

These are all awfully late but I kept forgetting.

So, today foc_u wants:
anyone who identifies as a POC/non-white to post this banner, their speculative short stories, artwork, poetry or simply write a post on their favorite fandom on their blogs as an act of protest to show we will not be silent or invisible.

(nb there have been issues raised about the mod and whether or not that stops you is up to you)

It's International Day Against Homophobia and Transphobia

Oh and I forgot International ME/CFS awareness day entirely. I was too sleepy :/

And some less time time dependent stuff:
sea_sff: Southeast Asian sff fans!

wild unicorn herd check in If you identify as a POC/nonwhite person and you read or watch scifi or fantasy, give yourself a name check in this thread.

Since that fact that non-white/POC fans exist seems impossible for some people to fathom. (This is a follow on from some amazingly stupid comments by Lois McMaster Bujold but it's a problem which goes beyond her)

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