sqbr: pretty purple pi (I like pi!)
Sean ([personal profile] sqbr) wrote2008-11-09 05:28 pm
Entry tags:

On inappropriate envy

Two things you should not say to someone whose life is significantly affected by a medical condition:
1) Wow, I wish I could life your life!
2) If I had to live like that I would die

I've had quite a bit of the latter when I tell people I can't eat much chocolate etc, it get a bit frustrating. I don't mean "That must be annoying", I'm talking a reaction of intense pity and shock. (It's not that bad!)

But now I have chronic fatigue I get a lot more of the former. To anyone who wants to spend all day laying around doing nothing? Do it! What's that, you can't afford it? You'd feel guilty? People might give you crap? That doesn't stop me, don't let it stop you!

Still, thinking about this reminded me to look up [livejournal.com profile] dot_gimp_snark. Also Lauredlh has a good post about chronic fatigue and invisible disabilities here.

Tactless oaf that I am, I have almost certainly said both of these things multiple times to different people, especially since most of the time it's just people reacting in "Oh god I don't know what to say" panic, which is a common state for me. So, you know, if you've done it to me I probably just accepted it as karma :)

[identity profile] dabear.livejournal.com 2008-11-09 12:32 pm (UTC)(link)
I found my short term memory was the worst. Like, from minute to minute, and when you're used to being able to use your brain for like, stuff... like knowing why you just went to the effort of walking down the stairs... it's kind of crazy-making.
alias_sqbr: the symbol pi on a pretty background (Default)

[personal profile] alias_sqbr 2008-11-09 10:05 pm (UTC)(link)
Did I mention I forgot my sisters 21st birthday? :(

And yes, when walking to another room is a major effort, it's pretty annoying not to be able to remember why you did it.