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Sunday, November 9th, 2008 05:28 pm
Two things you should not say to someone whose life is significantly affected by a medical condition:
1) Wow, I wish I could life your life!
2) If I had to live like that I would die

I've had quite a bit of the latter when I tell people I can't eat much chocolate etc, it get a bit frustrating. I don't mean "That must be annoying", I'm talking a reaction of intense pity and shock. (It's not that bad!)

But now I have chronic fatigue I get a lot more of the former. To anyone who wants to spend all day laying around doing nothing? Do it! What's that, you can't afford it? You'd feel guilty? People might give you crap? That doesn't stop me, don't let it stop you!

Still, thinking about this reminded me to look up [livejournal.com profile] dot_gimp_snark. Also Lauredlh has a good post about chronic fatigue and invisible disabilities here.

Tactless oaf that I am, I have almost certainly said both of these things multiple times to different people, especially since most of the time it's just people reacting in "Oh god I don't know what to say" panic, which is a common state for me. So, you know, if you've done it to me I probably just accepted it as karma :)
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Sunday, November 9th, 2008 10:19 pm (UTC)
Oh yes, I totally understand (and do not begrudge) envy of having a diagnosis, I've been in that boat myself. I mean, part of me is almost glad I got so bad the doctor had to give in and admit I had chronic fatigue, since it's been eight years of "Maybe you just need to eat more vegetables", "You've just had a series of identical virii", "Have you considered antidepressants?" etc. Bah.