May 2025

S M T W T F S
    123
45678910
11121314151617
18192021222324
2526272829 3031

Page Summary

Style Credit

Expand Cut Tags

No cut tags
Sunday, November 9th, 2008 05:28 pm
Two things you should not say to someone whose life is significantly affected by a medical condition:
1) Wow, I wish I could life your life!
2) If I had to live like that I would die

I've had quite a bit of the latter when I tell people I can't eat much chocolate etc, it get a bit frustrating. I don't mean "That must be annoying", I'm talking a reaction of intense pity and shock. (It's not that bad!)

But now I have chronic fatigue I get a lot more of the former. To anyone who wants to spend all day laying around doing nothing? Do it! What's that, you can't afford it? You'd feel guilty? People might give you crap? That doesn't stop me, don't let it stop you!

Still, thinking about this reminded me to look up [livejournal.com profile] dot_gimp_snark. Also Lauredlh has a good post about chronic fatigue and invisible disabilities here.

Tactless oaf that I am, I have almost certainly said both of these things multiple times to different people, especially since most of the time it's just people reacting in "Oh god I don't know what to say" panic, which is a common state for me. So, you know, if you've done it to me I probably just accepted it as karma :)
Tags:
Sunday, November 9th, 2008 11:22 am (UTC)
LOL!

if i recall correctly, i was too stunned at the time to say anything much (plus it was my then-boyfriend's mother who made the comment. but, yeah. bad. i was and looked) pretty sick at the time.
Sunday, November 9th, 2008 10:02 pm (UTC)
Ah, yes, boyfriend's mothers. I know them well :/