May 2025

S M T W T F S
    123
45678910
11121314151617
18192021222324
2526272829 3031

Style Credit

Expand Cut Tags

No cut tags
Sunday, March 15th, 2009 07:42 pm
So people with chronic fatigue syndrome are a minority in society. People with vaguely similar chronic illnesses and disabilities are less of a minority, I have no idea how much less.

But I still get very annoyed when people assume that anyone who does *blah thing to save energy* must be lazy. Yes, in the old days we didn't have labour saving devices etc. And in the old days, being chronically ill or disabled really sucked. (It still does, but not as much)

Pre-prepared food, remotes, scooters, whatever.

I mean I can understand saying "Surely not EVERYONE who uses this actually needs it, so the overall popular trend is bad even if some uses are valid" but you can't judge any given person without knowing their circumstances.

Even if they're overweight, especially since mobility issues tend, oddly enough, to lead to weight gain. Sometimes people's ill health is either unrelated to, or the cause of their weight issues, and we have just as much right to do unhealthy things like eating junk food as anyone else. Sick and disabled people do not fit into neat little boxes of "lovable perfect victim who never complains" and "entitled whiner who brought it on themselves".

Not aimed at anyone in particular, inspired by hearing about examples of overweight people with similar symptoms to mine (shortness of breath, low blood sugar meaning I need to eat often, slow ungainly gait etc) being judged for "making themselves sick by not losing weight", and thinking dark thoughts about my future since I can't see how I can not gain weight with my current level of immobility. Also this post, which has the added fibre of classism!

Oh, and that woman at the station who said to the man awkwardly carrying his crutch off the train before putting it back on "You obviously don't need that, haha"

Phew! I feel better now.
Monday, March 16th, 2009 05:44 am (UTC)
Thanks for your input too!

This, this sums up a part of my reaction I was struggling to articulate really well:

if you are complaining about how it's just so hard because you feel vaguely run down but all your tests come back fine, I would like you to meet my friend with nasty CFS, and while you're talking to her, my severe-clinical-depression-having, chronic-pain-suffering self would like to kick you in the shins, because neither of us whines all that much (imo) and we have problems of our own

I think it's a part of why I was asking for reactions too, since when I think that sort of thing, I'm conscious that I'm effectively getting defensive on the behalf of less able friends. And so, instead of speaking and reacting for other people, I was interested in hearing what they had to say themselves on the matter.

I'm gradually coming to the position that my awkwardness with this whole situation arises from a communication gap. I tend to take things literally, so when people express a dislike for the way things are and a desire for change, I take that at face value. However, I suspect that there's something else going on here, and that maybe by sustaining a situation that allows them to complain, people are sometimes trying to communicate a need for affection, care and concern.

Things would be less confusing if human were more like Vulcans! :D