A comment about judging people

[sqbr]

So people with chronic fatigue syndrome are a minority in society. People with vaguely similar chronic illnesses and disabilities are less of a minority, I have no idea how much less.

But I still get very annoyed when people assume that anyone who does *blah thing to save energy* must be lazy. Yes, in the old days we didn't have labour saving devices etc. And in the old days, being chronically ill or disabled really sucked. (It still does, but not as much)

Pre-prepared food, remotes, scooters, whatever.

I mean I can understand saying "Surely not EVERYONE who uses this actually needs it, so the overall popular trend is bad even if some uses are valid" but you can't judge any given person without knowing their circumstances.

Even if they're overweight, especially since mobility issues tend, oddly enough, to lead to weight gain. Sometimes people's ill health is either unrelated to, or the cause of their weight issues, and we have just as much right to do unhealthy things like eating junk food as anyone else. Sick and disabled people do not fit into neat little boxes of "lovable perfect victim who never complains" and "entitled whiner who brought it on themselves".

Not aimed at anyone in particular, inspired by hearing about examples of overweight people with similar symptoms to mine (shortness of breath, low blood sugar meaning I need to eat often, slow ungainly gait etc) being judged for "making themselves sick by not losing weight", and thinking dark thoughts about my future since I can't see how I can not gain weight with my current level of immobility. Also this post, which has the added fibre of classism!

Oh, and that woman at the station who said to the man awkwardly carrying his crutch off the train before putting it back on "You obviously don't need that, haha"

Phew! I feel better now.

Comments

[greteldragon.livejournal.com]

Oh, and that woman at the station who said to the man awkwardly carrying his crutch off the train before putting it back on "You obviously don't need that, haha"

Bitch. Sometimes I need a crutch sometimes I don't, sometimes they make things easier, other times they don't! *angers*

Even though now I don't need a crutch at all, just an actually useful physio. :P

[alias_sqbr]

Apparently people who use wheelchairs and stand up sometimes totally screw with people's heads.

[nephron.livejournal.com]

I'm just totally lazy part of the time (and a complete spendthrift dangerous whore a portion of the rest), why don't I just take responsibility for my actions?

[alias_sqbr]

Hey don't ask me, I still do self destructive crap.

[stephbg.livejournal.com]

Plus the medication can make you puffy with fluid and/or gain weight in general.

[alias_sqbr]

And then there's stuff like thyroid problems, where "weight gain" is one of the major symptoms.

[ataxi.livejournal.com]

Nasty post!

[alias_sqbr]

Eh, more grumpy than nasty I'd say.

[flyingblogspot.livejournal.com]

I'm really curious and want to know more about your opinion on a particular issue, and I'm trying really hard to explain why in a way that's not overly offensive to anyone involved! So here we go...

Firstly, I'm coming at this from an able perspective (my chronic issues are merely brain and gluten related!) and also as someone who has had this conversation with a surprisingly large number of able friends:

Them: "I feel so lethargic all the time, but all of my tests came back fine."
Me: "Okay, I know you eat pretty healthy food, but what activities do you do regularly that raise your heart rate above normal?"
Then: "Umm...nothing. I don't really like doing stuff like that."

(I've also had a similar conversation with many people who've said that they'd like to drop a few kilos but have a ton of excuses as to why they can't possibly tweak their diet to eat a higher proportion of fruit/veg and a lower proportion of carbs. [At which gluten-free me snarks 'WTF it's not that hard'])

These conversations tend to leave me in a place of puzzled frustration; I struggle to feel empathy when people have the ability and information to address their complaints, but choose not to. I don't really know how to continue the conversation when they're saying 'I don't like how things are and I'm not going to change anything to fix it'.

So, I'm really curious, from your perspective and experience with chronic fatigue, how do you personally feel when you see people who are fundamentally able with no chronic health issues make the choice not to feel better? (And I'm not talking about random people on the street and making assumptions about ableness, but people whose situation you know well.)

Are you more empathetic than you were before you experienced chronic fatigue? Less? Do you worry that their choices bring more societal judgment upon less able people, or do you want to defend their right to choose not to be well? Does it bother you that they don't make the small changes needed to increase their well-being when it's so much easier for them to maintain it than it is for you to feel well? Do you feel angry, supportive, indifferent or something else?

OMG so many questions, sorry. :) I just realised that I've never had the chance to question someone about this who would give an honest and articulate answer!

Cramming in my 2c

[infamyanonymous.livejournal.com]

Not Sophie, but similar issues to a lesser degree, I want to respond to gist of this.

I have been overweight my whole life (due to various reasons, about 50% psychological, 50% sheer laziness.) Society seems to say that fat = bad. Any reason or contributing factors are "excuses". Until you are thin and bouncing around in a bikini on the beach, you are not human, you are an insensate blob upon whom it is perfectly okay to pass comment.

It's really an ingrained mentality in our society. Many of my friends and family have betrayed their feelings, implying that it is all just an excuse. Some have actually paraphrased this.

And as for my opinion on people who can't be bothered, I don't care. I'd prefer not to pass judgement on how they treat their bodies. A dietary or lifestyle change is voluntary; there may just be much greater motivation for different people (e.g. avoiding death from anaphylaxis.) In theory I could lose weight, I just have enough to cope with at the moment and would rather work on internal improvement.
Anyone who should change their diet/lifestyle gets lumped into leper box, and I can't deny anyone the privilege of being lazy.

[ataxi.livejournal.com]

Lacking the motivation or desire to change one's state of being even given a clear pathway is a somewhat separate issue from complaining about it. Is it only the combination of the two that bothers you, or is it either separately as well?

We've touched on this subject before, but it's reasonably clear from your writing that you affirm the idea of targeting improvements in one's personal happiness ("my happiness project" etc. -- which it has been interesting to watch evolve over time). But if life isn't about pursuing happiness then merely being unhappy is not a sufficient reason to act.

There's a lot more I'd like to say about life analysis: for example about the granularity at which one observes the broad factors affecting life. But it's a bit late for me to do more than ramble, so I'll leave that for now.

"I struggle to feel empathy when people have the ability and information to address their complaints, but choose not to."

This view fits very neatly into that old (and dodgy) chestnut about men wanting to solve women's problems and women wanting to get a bit of sympathy: except you're not a man. But it makes me wonder about the type of status relationship you have with the aforementioned disdained non-problem-solvers.

[alias_sqbr]

I honestly cannot remember the last time I felt even remotely certain that the person I was talking to was lazy and whiny (Cam is lazy but honest about it, that I can live with)

The thing is, I spent eight years being told and believing (my doctors, friends, family, supervisors, etc) that I was lazy because I was "tired all the time and tests came back fine". Any time I tried exercising more I felt terrible because exercise exacerbates chronic fatigue. Any time I tried eating less (I eat a *lot*) I felt terrible for various reasons to do with my stomach and blood sugar etc. I upped my vegetable content just so doctors would stop bugging me about it and actually pay attention to me, and sure enough the main difference it made was being able to say "Why yes, I do eat lots of vegetables. So that's not the problem". I was told by doctors that it was very important for me to lose weight, so I pushed through and exercised even though I didn't feel like it and am now so sick I can barely move.

Also: My cfs doctor told me to try going off gluten and cut down on my carbs and I felt terrible. I really don't function well without large amounts of high fibre wheat/oats, even after several months I still never felt right and felt MUCH better after going back on gluten. Luckily his response was to say "Oh well, it was worth a shot, lets try something else".

A lot of my friends have had similar experiences, and I spend a fair amount of time talking to other people with cfs who have often also had years of everyone telling them they were "lazy", in many cases they still struggle with it. With cfs this can literally kill you.

So if someone says they feel tired all the time and can't fix it? I believe them. No skin off my nose.

I mean there have been changes I made under sufferance which genuinely helped. Eating more vegetables didn't help with my fatigue but did make everything a bit less fuzzy. Eating more fibre was very helpful with my indigestion. Cutting down on my refined sugars helped even me out. And I had heard those suggestions for years before and it took me ages to get around to trying them, but life is short and busy and full of contradictory advice.

So I tell people what worked for me, and it's their choice whether or not to follow it. I feel no certainty it will work for them.

I mean I probably do give people more benefit of the doubt than they deserve, but I can't bring myself to care. It might be different if I was a medical doctor etc. I don't even get that fussed when people say "I think I might have chronic fatigue but I don't know.." since I was in that boat for ages, though I do tend to say "Well that could be very serious you should get some tests done and if it is cfs learn about it's treatment or you'll make yourself sicker", and if they were being hyperbolic that shuts them up :)

[grahame.livejournal.com]

The trouble is just that people are really good at taking a cause and effect like "laziness makes you fat", then flipping that around to if you are fat you are lazy. I suspect the problem is just that it's true X percent of the time, where X is high enough that people feel confident in the false connection.

Underlying motivation is just that we like feeling better than other people, it's not that surprising. It sucks, but we're not particularly logical or rational beings :-)

[alias_sqbr]

Yep, absolutely. Also lots of lazy people aren't fat, so it's more like "laziness is somewhat correlated with fatness" :)

[meljane.livejournal.com]

I still remember after I had a car accident I had a bandage on one knee and stitches and was hobbling around with cane .

I was supose to be staying home and resting rather than catching public transport to a friends place to finish an assignment .

I knew that sometimes people would sit on the priority seats even when there were old and disabled people around and I was knocked around in the train and the seats was occupied by a youngsters that didn't need it and wouldn't get up to offer it to me and I didn't push them either .

Even people in other seats would'nt offer me a seat even though they could see I was a cane to walk with .

This was a few years ago and I have found that people are more willing to offer seats to the elderly and still not so much the handicapped .

[alias_sqbr]

Yeah, there's an attitude that young people can't really be sick.

[babalon-93.livejournal.com]

agreed.

absence of fat is not equal to health, nor is health equal to moral superiority.

[alias_sqbr]

As a not-that overweight, very unhealthy, morally superior person I agree with you :D

[miss-kittylix.livejournal.com]

This is slightly off topic, but reading the comments and your past made me think about how women's bodies in general are often the focus for criticism. She's too fat, thin, boobs too small, too big, legs too short, too long etc. It's exhausting. I've been losing weight lately through exercise and diet and one male friend said something along the lines of "I don't like you losing weight." I truly had a wft moment. Even boyfriends don't really get to say that sort of stuff unless its out of concern in my book. When I asked why, he said something like he liked girls more curvy or some rubbish.

I mean, is it not my decision how i want my body to look? I just don't understand why there is so much furore over women's bodies. It makes me angry and frustrated

[alias_sqbr]

YES.

Because of course our number one concern is looking hot. To men. All men.

Have you ever noticed how women are always introduced as "The Lovely such-and-such" even if they're a famous doctor or something? After reading "The Beauty Myth" I started noticing stuff like that more and more. Stupid irritating world.

[greteldragon.livejournal.com]

Oh, and that woman at the station who said to the man awkwardly carrying his crutch off the train before putting it back on "You obviously don't need that, haha"

Bitch. Sometimes I need a crutch sometimes I don't, sometimes they make things easier, other times they don't! *angers*

Even though now I don't need a crutch at all, just an actually useful physio. :P

[alias_sqbr]

Apparently people who use wheelchairs and stand up sometimes totally screw with people's heads.

[nephron.livejournal.com]

I'm just totally lazy part of the time (and a complete spendthrift dangerous whore a portion of the rest), why don't I just take responsibility for my actions?

[alias_sqbr]

Hey don't ask me, I still do self destructive crap.

[stephbg.livejournal.com]

Plus the medication can make you puffy with fluid and/or gain weight in general.

[alias_sqbr]

And then there's stuff like thyroid problems, where "weight gain" is one of the major symptoms.

[ataxi.livejournal.com]

Nasty post!

[alias_sqbr]

Eh, more grumpy than nasty I'd say.

[flyingblogspot.livejournal.com]

I'm really curious and want to know more about your opinion on a particular issue, and I'm trying really hard to explain why in a way that's not overly offensive to anyone involved! So here we go...

Firstly, I'm coming at this from an able perspective (my chronic issues are merely brain and gluten related!) and also as someone who has had this conversation with a surprisingly large number of able friends:

Them: "I feel so lethargic all the time, but all of my tests came back fine."
Me: "Okay, I know you eat pretty healthy food, but what activities do you do regularly that raise your heart rate above normal?"
Then: "Umm...nothing. I don't really like doing stuff like that."

(I've also had a similar conversation with many people who've said that they'd like to drop a few kilos but have a ton of excuses as to why they can't possibly tweak their diet to eat a higher proportion of fruit/veg and a lower proportion of carbs. [At which gluten-free me snarks 'WTF it's not that hard'])

These conversations tend to leave me in a place of puzzled frustration; I struggle to feel empathy when people have the ability and information to address their complaints, but choose not to. I don't really know how to continue the conversation when they're saying 'I don't like how things are and I'm not going to change anything to fix it'.

So, I'm really curious, from your perspective and experience with chronic fatigue, how do you personally feel when you see people who are fundamentally able with no chronic health issues make the choice not to feel better? (And I'm not talking about random people on the street and making assumptions about ableness, but people whose situation you know well.)

Are you more empathetic than you were before you experienced chronic fatigue? Less? Do you worry that their choices bring more societal judgment upon less able people, or do you want to defend their right to choose not to be well? Does it bother you that they don't make the small changes needed to increase their well-being when it's so much easier for them to maintain it than it is for you to feel well? Do you feel angry, supportive, indifferent or something else?

OMG so many questions, sorry. :) I just realised that I've never had the chance to question someone about this who would give an honest and articulate answer!

Cramming in my 2c

[infamyanonymous.livejournal.com]

Not Sophie, but similar issues to a lesser degree, I want to respond to gist of this.

I have been overweight my whole life (due to various reasons, about 50% psychological, 50% sheer laziness.) Society seems to say that fat = bad. Any reason or contributing factors are "excuses". Until you are thin and bouncing around in a bikini on the beach, you are not human, you are an insensate blob upon whom it is perfectly okay to pass comment.

It's really an ingrained mentality in our society. Many of my friends and family have betrayed their feelings, implying that it is all just an excuse. Some have actually paraphrased this.

And as for my opinion on people who can't be bothered, I don't care. I'd prefer not to pass judgement on how they treat their bodies. A dietary or lifestyle change is voluntary; there may just be much greater motivation for different people (e.g. avoiding death from anaphylaxis.) In theory I could lose weight, I just have enough to cope with at the moment and would rather work on internal improvement.
Anyone who should change their diet/lifestyle gets lumped into leper box, and I can't deny anyone the privilege of being lazy.

[grahame.livejournal.com]

The trouble is just that people are really good at taking a cause and effect like "laziness makes you fat", then flipping that around to if you are fat you are lazy. I suspect the problem is just that it's true X percent of the time, where X is high enough that people feel confident in the false connection.

Underlying motivation is just that we like feeling better than other people, it's not that surprising. It sucks, but we're not particularly logical or rational beings :-)

[alias_sqbr]

Yep, absolutely. Also lots of lazy people aren't fat, so it's more like "laziness is somewhat correlated with fatness" :)

[meljane.livejournal.com]

I still remember after I had a car accident I had a bandage on one knee and stitches and was hobbling around with cane .

I was supose to be staying home and resting rather than catching public transport to a friends place to finish an assignment .

I knew that sometimes people would sit on the priority seats even when there were old and disabled people around and I was knocked around in the train and the seats was occupied by a youngsters that didn't need it and wouldn't get up to offer it to me and I didn't push them either .

Even people in other seats would'nt offer me a seat even though they could see I was a cane to walk with .

This was a few years ago and I have found that people are more willing to offer seats to the elderly and still not so much the handicapped .

[alias_sqbr]

Yeah, there's an attitude that young people can't really be sick.

[babalon-93.livejournal.com]

agreed.

absence of fat is not equal to health, nor is health equal to moral superiority.

[alias_sqbr]

As a not-that overweight, very unhealthy, morally superior person I agree with you :D

[miss-kittylix.livejournal.com]

This is slightly off topic, but reading the comments and your past made me think about how women's bodies in general are often the focus for criticism. She's too fat, thin, boobs too small, too big, legs too short, too long etc. It's exhausting. I've been losing weight lately through exercise and diet and one male friend said something along the lines of "I don't like you losing weight." I truly had a wft moment. Even boyfriends don't really get to say that sort of stuff unless its out of concern in my book. When I asked why, he said something like he liked girls more curvy or some rubbish.

I mean, is it not my decision how i want my body to look? I just don't understand why there is so much furore over women's bodies. It makes me angry and frustrated

[alias_sqbr]

YES.

Because of course our number one concern is looking hot. To men. All men.

Have you ever noticed how women are always introduced as "The Lovely such-and-such" even if they're a famous doctor or something? After reading "The Beauty Myth" I started noticing stuff like that more and more. Stupid irritating world.